LJ Goes of the Thinking Mom’s Revolution posted an amazing status today. Some one told her, "You know, what's hard LJ, is, it's just so hard for the mainstream to understand where you are coming from. Don't get me wrong. I think you are a good writer, I really do, lots of powerful stuff you put out there. Really. It's good. But, I mean, it's too much. From the vaccine court, to the food contamination you talk about...it's a lot to take in. People want to help you I think, they just...well they just feel overwhelmed by, well--guess the word is "darkness" of it all, you know? People just do not live like this. Not saying they don't, that's not what I meant, I mean...I believe you...it's just most people do not have this sort of desperation about them. Maybe brainstorm on how you could simplify it. Maybe...really drill down and then let me know how I can help you with that one issue. You know?"
As Ed and I sat eating lunch today, I was telling him about this post and how I recently was told by another autism parent that I was “more intense” then most. Ed commented on how many realities I do not post, and how lucky all my Facebook friends are that when we really went through “shit” literally and figuratively there was no Facebook. There was no Facebook when our lives were lived in shifts so that there was someone up with the boy who only slept for 2 hours a night. That was the “intense” time when life was very “intense”; unlike now when the intensity only shows up every other month. We then continued on to how so many times when Austin was young we did not know we might be some version of “normal”. Somehow via the internet, yahoo groups, and then Facebook we were clued into the knowledge that we were NOT ALONE. We may not be normal but we are definitely not ALONE. The difference is most people in our position do not speak of it. I guess I could take away from hearing the fact that I am more intense them most, that maybe I post too much about the bad and not about the good. Let me just put it this way: there is a song by Meatloaf that Ed listens to quite often that states “it was long ago and it was far away and it was so much better than it is today!”. Well that is not our life today. As intense as it may seem today, “it is so much better than it was yesterday”!!!!
So let us all understand that the parents of children who elope are not necessarily neglectful, our children are very attentive and will take advantage of any opportunity. Let us just be grateful that it didn’t happen to us today and say an earnest prayer for the parents of the children who have left the safety of their home, especially Michael Kingbury’s family who was found dead while we wrote this: May God keep our kids safe and may his Spirit be able to comfort the parents of Terry Smith, who are at this moment the terrified parents of a child with autism who has gotten out!!!!!!
This blog was a team effort of both Ed and Shannon Primer and with a lot of tears shed because it hits way to close to home.
The NAA and TACA have also teamed up to help with wandering and given great advice on how to help your local first responders. Please read this as it gives a small amount of the NAA’s information on the subject.http://pitaup.blogspot.com/2013/06/autism-and-wandering.html