Reflections on SB277 Referendum

To all the SB277 Referendum Warriors in the State of California,

I thought we all might need a little pick me up while we all wait anxiously for answers.

When there are big moments in my journey to awaken the world about vaccines risks I have found theme songs that represent my feelings at the time.  I thought I would share my new theme song since the referendum started.

"Like a small boat on the ocean
Sending big waves into motion"

We are that small boat and we are not going away.

Before Autism and vaccine damaged I lived the perfect "soccer (but insert football) mom" life.  After vaccine damage we pretty much have lost all our mainstream friends and have lived in the world of autism.  This fight has renewed my faith in society.  This fight has brought me back into the real world, where you talk about things other then autism.

This song is dedicated to each of you who worked hard and are helping me because this is my

"Take back my life song
Prove I'm alright song"

I think we can all relate to this portion of the song also.

"And I don't really care if nobody else believes
Cause I've still got a lot of fight left in me
Losing friends and I'm chasing sleep
Everybody's worried about me
In too deep
Say I'm in too deep
And it's been two years
I miss my home
But there's a fire burning in my bones"

Thank each and everyone of you for helping me in this journey, not just back into society but in learning so much about myself!

Thank you especially to the San Diego team who kicked ass!!!

We will forever be bonded.

#NotGoingAway

This Is My Fight Song

SB277 Referendum should you sign, should you not, should you give up your medical rights? Let's talk!

I think it is important to remember this is an ALL or nothing bill.  If you are missing one vaccine your child can not go to school.

Many children who will be denied an education that is guaranteed under the California State Constitution are missing something as simple as the Hep B vaccine at birth.

Just that missing 1 vaccine means no school.

This also labels families who do not "vaccinate" under this law, "anti-vaxx" !

Most of the people working on the SB277 Referendum and have been many times to Sacramento on this issue are not anti vaccines.  We HATE BEING LABELED THAT!  We are pro choice!  We think medicine should be between a doctor and a patient.    NOT BETWEEN YOUR GOVERNMENT AND YOUR DOCTOR!!!  Your doctor should be able to make your medical decisions on your family history and medical history, and include medical labs!! 

The California Medical Association (http://www.cmanet.org/) has also recentlysent out a message to their members saying, “This is an attack not only on Dr. Pan, but on the professional integrity of physicians across the state.”

I would argue as a patient that bills like SB277, SB792, Ab1117, and HR2232 do the opposite.  They TAKE AWAY THE “professional integrity of physicians”!

These bills take away your doctor’s ability to make decisions based on your medical history!  They make them forced to explain THEIR MEDICAL DECISIONS IF IT CROSSES A STATE MEDICAL MANDATE!!

I am not asking you to agree or disagree with SB277, I am asking you to please give us another year for you and the rest of the public to research this bill and all the others I have mentioned!!  Please consider signing the SB277 Referendum and donating to http://www.gofundme.com/SB277Referendum

If you are worried about these diseases, you might want to also research vaccine shedding!!

You might also want to stay away from recently vaccinated people.

Or as we call them babies, kindergartners, 7th grade students, and soon all daycare workers and volunteers.

Senator Pan denied that vaccines shed in many hearings this last spring!

Here is ANOTHER mainstream article that say that vaccines SHED! (You can find many mainstream articles and even on the CDC.gov site that vacines shed)

http://www.nbcnews.com/id/32418446/ns/health-infectious_diseases

You have nothing to fear from healthy children that are partially vaccinated or not vaccinated.

Most children with Personal Exemptions (about 2%) fall in the "partially" vaccinated category and would be denied an education that is guaranteed by our California State Constitution!!!

Please if you have any little nagging thoughts on SB277, sign the referendum and give your self a year to educate yourself on this subject!!  This just puts the subject on the ballot!  It does not mean the decisions is decided one way or the other!  It just lets the PEOPLE VOTE ON IT!!
Need more information, please ask we have just a few weeks to get this on the ballot and let the people vote!

Politics and SB277

I am glad I do not watch daytime tv on time. Caught the beginning of yesterday's The Rachael Ray Show and they had President Bill Clinton on. It makes me happy and sad all at the same time. I miss my 20's where I trusted my government and I was out campaigning, making calls, and volunteering for his campaign even though I had two small children.

Today at 2 am in the morning, I sit here fighting my government for what I bottom line believe are my constitutional rights to chose medical care for my children. This is not a pro/anti vax stance, this is that big companies should not be able to tell my doctor or me how or what medical care I should do. My medical decisions for my family of complex medical issues: Heart Disease, Cancer, Autism, Mitochondrial, Auto-immune, MTHFR, Strep, and more then I care to think about should NOT BE DECIDED BY A DOCTOR IN SACRAMENTO WHO HAS NEVER MET ME OR MY FAMILY (despite my 6 trips to Sacramento).

Medical decisions should be made between a patient and a doctor, based on family history and medical tests. (End of subject))

I am sad that I will NOT VOTE FOR HILLARY. I am sad that the party I fought so hard for years no longer values that I can make medical decisions for my children. I am sad that they value a corporations donations and money more then the people that elect them.

No matter where you stand on the referendum, I hope you know that we stepped into this to protect your medical rights. We also hope that all our elected officials remember one important thing, you piss off enough people and you can lose your job.

If you would like more information on the referendum you can read more about it here or sign up the cause at http://sb277referendum.com/

What is the bigger threat to the Greater Good? Who is the Greater Good?

This last week while many of us started our 1st week of summer, or finished up finals, or went to a graduation party (including me)...

7 children with Autism DIED FROM WANDERING! The stats say 1 in 68 children have autism (the reality is that is of children 12 and older)!!!

http://www.ageofautism.com/2015/06/autism-epidemic-is-killing-children-where-are-the-politicians-now.html

Zero died from the measles or was reported to the news for any other disease we vaccinate for. Yet our government thinks we need to mandate everyone be vaccinate?

Where are the mandates to find the cause of autism? Where are the mandates to keep my kid safe?

Yeah still waiting, hear the crickets chirping? Me too!!!

Well I don;t have time to wait for my elected officials to help with wandering, so I am here to tell you how you can help!!!

Like the Missing Persons with Autism page so we can make sure all missing children like mine are found ASAP!!!!

Help fund the National Autism Association's wandering program after you read about how they help.

http://www.autismsafety.org/wandering.php

Call your state and US elected officials and ask why protecting The Greater Good only pertains to vaccines and not to a child with autism that wanders. The number of cases of autism diagnosed last year far out way the number of cases of measles.

The deaths for wandering and autism THIS WEEK far out ways the deaths from measles since 2005!!!!!!

Autism THIS WEEK 7 deaths, measles the last 10 YEARS??? ZERO, NONE, NADA, ZILCH, I am sure I missed some other word, but it still equals NONE!!!!

‪#‎NoOnSB277‬ ‪#‎MyKidMatters‬

Now go PITAUP and change the world!!!

I have no idea what the action plan is today for ‪#‎SB277‬, but I can tell you one thing, moving is not it!!!! There was just a federal bill introduced that is very similar to SB277!!

If your end plan is to move out of the country, then great, get packing.

If your plan is to move out of state you are SOL (yes that does mean "shit out of luck") since there is now federal legislation being introduced!!! Now is not the time to pack your bags, now is the time to find your voice, speak up and fight.

This is no longer "IF" it happens, it is "when" it happens, if you sit on the side line and do nothing.

Yes that is meant to SCARE THE HELL OUT OF YOU...

IT IS MEANT TO GET YOU TO SPEAK UP AND STAND OUT!!!

This fight is far from over!!!

UNLESS WE ARE SILENT!!!

This bill passed the CA Senate, it IS NOT LAW YET!!! We need to keep explaining what people can do right now in CA fight SB277! AGAIN this is not just coming to CA it is coming to every state in the union!!!!

In California DO THE ACTION PLAN THAT IS PUT OUT DAILY!!!!

Find your CA State Assembly Person and politely tell them your position on SB277, SB792 and any other mandatory vaccine bill that may be proposed.

http://assembly.ca.gov/|

Not in California?

Contact your US Senator and House of Representative and oppose the national bill.

An Open  Letter to Chili's Bar and Grill Corporate!!

Hey Chili's Grill & Bar and Chili's Grill & Bar (Vista)  just wanted to let you know how much the competition TGI Fridays, the new Buffalo Wild Wings Oceanside, and a bunch of local places appreciates you taking back the National Autism Association fundraiser to prevent wandering for children with autism.  Our Friday nights (party of 4 -10) visits and 20-30 people visits (family/company in from out of town/Family Birthday parties/fundraisers) are increasing their bottom lines.

Being a parent of child with autism  who is almost 13 (and wanders), in my 10.5 years of living this world, this life, I have seen and read almost every story I see about kids with autism who wander.  I also help run a Facebook page dedicated to this subject and finding our kids safely.

According to the NAA's stats 50% OF KIDS WITH AUTISM WANDER!  In my opinion  1 to 2 of those die a month from WANDERING.  They die from drowning, they die from getting hit by a car, they die from the extreme tempatures of seasons.  

THEY DIE!! (And they say autism is not deadly, I am calling... on this)

Also if you just think it is the kid, like mine who doesn't talk and can't ask for help that wanders, YOU'D be wrong.  It is 50% of all of our kids.

Tomorrow it will be 4 months since you did the unthinkable and changed your mind.  I wonder how many children with autism have wandered and died?  I wonder how many of them could have been saved if you had kept your word?

I will always wonder!!

At least one local child in my circle of friends and my city wandered and was gone for 1.5 hours.  Thanks to the NAA wandering program and our local Take Me Home Program there were 7 Oceanside Police Officers (heroes)  at their house in minutes and they took the threat seriously.  Thankfully he lived!!!

No thanks to you!  Thanks to families of kids with Autism and families like mine who take the time to educate our local law enforcement!!!

You're upper management is the opposite of hero you are WEAK and caved when our community needed you.

Happy 4 month anniversary (tomorrow August 6, 2014) of not having my money or that of most of my community.

I pray that no one in that upper management team that made this decisions has a kid with autism or a grandkid with autism, because you all will CRACK under the pressure and our kids deserve better then YOU!!

Now all I am left with is bad memories of how much we have spent with your company over the years, YES I AM BITTER!!!  Happy to give money to companies who stand by their promises.

Honestly, in my mind, there is only one company that you out rank in diservices to families like mine and that is Autism Speaks (yeah I don't believe they are a charity, I have read their tax returns)!

PEACE Out (OFF)!  I'm still taking my business else where.

NO LOVE HERE,

Shannon Primer
Mom to Austin Primer, age 13 on September 1st, 2014, who wanders!!!

PS Autism parents are like elephants we never forget, figure out how to fix this problem with our community!!

P.S.S. Since 4/6/14 when you canceled the funraiser that was supposed to happen the NEXT DAY, our family has had 17 Friday nights and at least 5 birthdays/family gatherings.

Copyright Shannon Primer and PitaUp.com

Don't "Ass"ume!!

This Washington Post story stirs up so many emotions in me.

This is the reality of many families with non verbal, not potty trained children. I have no idea if this is abuse or just trying to maintain their safety. I tend to lean towards the later, because we live in a house with locks. Austin is never locked in a room alone, but our house even on good days is locked when we go to bed. If we feel Austin is an extreme safety risk, one of us will instead of locking him in alone, sleep in his room with him. When he was at his extreme, we locked ourselves and him in his room.

We have also over the last almost 13 years dealt with pee and poop accidents. Our carpet is never going to be as clean as I would like it to be. If we didn't rent, I would never ever have carpet for this reason.

When you read this story, know that there are two sides of every story and do not assume. Most parents do not have the resources, the options, or the help that our family has had because of having older children and amazing siblings and parents to help us. We also live in SoCal which has given us many more resources then the rest of the country has!

If I did not have Ed and the older children, Ashley and Nick, to help back at the beginning 10.5 years ago could we have been this family?

YES!!

As I sit in Austin's room right now, I still think how much cleaner it could be and how the fact that his mattress is on the floor and that could be misinterpreted.

Honestly, as a renter, a mattress on a floor leaves less damage to the carpet below, and as a parent who owns her own carpet cleaner, once less area to clean. It also leaves one less chance for Austin to fall out a window. Yes parents like me think like that. We do not put anything near a window that can be pushed out.

Autism is a very complicated thing and it is a very individual thing.

When you meet one person with autism, YOU HAVE MET ONE PERSON WITH AUTISM!

It is not one size fits all, it is not all parents are the same, its sometimes all for fighting for your kid, while trying to make sure we leave it better for the next kid/family!!